Be U: Where I'm At

Coming for the Real You.

I'm hoping to share thoughts, fun and insightful information and aha moments with all to better serve ourselves and the universe.

My background is that of Executive Secretary for the local Electric company (11 years).

Certified Personal Trainer (since 1991) and Fitness Consultant for my own company, Beachin Bodies (6 years) and certified in Reiki and Nutrition with training in Cranial Sacral work, Tai Chi, and Meditation. Certified as a Professional Life Coach (2015); Minister at Universal Life Church (2016);

and, possibly, most important,

my own journey through illness and avenues, roads and roadblocks that I have taken to find the real me. (35 plus years).

The me that I was born as. The me that is the all-knowing. I believe the search is endless and we are here to learn and to love and to share it all.

Monday, June 12, 2017

Where I'm At

I am excited about the unknown. I am excited about being professional at doing what I do. I'm excited to grow and reach out to help others that desire the help.

I haven't heard from the Florida State Compassionate Use Registry telling me if they accept or decline my application for medical marijuana. I am so ready to try it. My curiousity is high. My hope is present.

June is Scleroderma Awareness month. It is also Father's Day. It is also my husband's birthday. Many are 'boosting' and getting the word out of what scleroderma is on Facebook. I'm proud of and grateful for them. Many have linked their profile picture to it. I support them and I support the cause for a cure. It is not in me to put scleroderma on my profile picture. I feel I would be saying that this defines me. I don't think this is what others are saying - I am saying that I feel this is what I would be saying and I don't wish to 'play my cards' in this manner. Everyone that knows me or is curious about me can know that I have been diagnosed with scleroderma and it has been a part of my life for most of my life. I don't want to give it any more energy than it asks for. I empower myself by keeping my page 'professional' and about 'just being me' or - as I like to say - it, 'Just Be U'.

My body aches every day. My inability to use my hands and even put a spoon in my mouth are getting harder; I just noticed yesterday. I found myself sitting and crying about this same thing. Sitting in the frustration of it; the hopelessness of it. Also knowing that I could be so much worse.

I go to the scleroderma (rheumatologist) today believing that there will be nothing new to say - no new drugs to try - leaving with as much information as I go in with. Yet, I still go. How interesting I find this today.

The weather makes my back sweat as I'm out walking the dogs. Today, I let it feel good and I welcome it as sweating doesn't come easy to 'my scleroderma skin'. I have very little cellulite. Ha. There is good in everything if I look - or look hard enough - it can surely be found.

May you look - look hard enough - to find the good in anything that may be frustrating and/or hopeless to you in this moment. May you find it. YOU are good. From the depth and magic from whence you came, you are good.

May you connect to your own depth and magic and live from this as often and as much as you can.

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My Past Story

The first thing I would always tell a new doctor was 'my dad left me when I was 10'. He just disappeared, ran away. It was pretty awful for me. I thought it was my fault as most kids sometimes do. I thought I was unlovable. Years later, 20 maybe, I realized it wasn't just that my dad left me that affected my life, but also that my mom stayed. She stayed and I'll be forever grateful. However, her staying wasn't all peaches and creme. She was so hurt, so distraught, so frightened to raise three kids on her own and find a job that it was very hard for her to be there for me and my needs. I chose to shutdown, be quiet and try not to make it any harder on her as to not ask for much, or voice much, or need much.

Years later, in 11/12th grade, I noticed my fingers being really cold and hurting all the time. I noticed them turning purple and the pain was very 'loud'. Humorously enough, I had chosen to be a secretary and typing was a big part of my everyday. I loved it even. Fingers flying across the keyboard with as little mistakes as possible was the goal. I was pretty good at it. While in typing class, I remember putting my hands on my neck to try to warm them and make them feel better. I was naive enough then to think this must be happening to everyone.

Anyway, years went by and nobody was able to tell me why this was happening or what to do to make it better. Then, approximately 4 years later, I remember (what I felt) was little me sitting across from a really big doctor at his really big desk and him telling me I was allergic to myself. Of course, this was him describing to me what auto-immune meant. I had a disease called scleroderma and it could kill me (sometimes in as little as five years) and I would most likely be on medicine and have it for the rest of my life and there was nothing to change it.

Anyway, almost 30 years later, I've had my share of pain and I'm alive. I've had ulcerations on my fingers and I have lost most of my nails on both hands from lack of circulation and producing too much collagen. My hands are somewhat not a pretty sight and to hit something with one of my fingers by accident (well, I refer to the feeling as 'going to the moon).

When I was about 30, I started looking at alternative medicine and I tried anything that came across my path to try to stop the pain. I have tried many normal and not so normal 'ideas'. I sometimes do not believe at what lengths I went to try to ease my pain and suffering!

This is what has brought me here to this point in my life.

I'm grateful to be able to learn so much about myself and life and I wouldn't take it back (well, some days I might want to).

Something was telling me to blog. I really didn't know much about blogging - I am still a novice at best. Approximately 5 weeks ago, I sat at my computer and started typing.

I am surprised at where my blogs have led me. I thought I was trying to help others and that still is a big goal of mine. However, what I am finding out is that this is a great outlet for me.

A way to feel like I'm doing something. I told a friend this morning about my blog and I said that it's draining because I put everything out there and do not hold back as I post each individual blog; its fun because it does give me an outlet and I feel a little purpose in my life; and it's scary because I don't want anyone laughing at me or telling me that I am completely 'off my rocker'!